Tag: social support

Music is the Sound of Laughter and Healing

Nick throws a frisbee to a young girl at the May 2021 Connect Night.

May 2021 Connect Night

Cancer Care Services’ Connect program brings people together so they can give and receive peer support. In addition to the social benefits (which reduce loneliness and isolation), we also incorporate therapeutic activities to build coping skills. Consequently, each Connect program is fun AND healing! So unsurprisingly, May’s Connect Night featured music, laughter – and a bit of a ruckus!

Children at the May 2021 Connect Night pick out their instruments.
May 2021 Connect Night

Nick, a new client who is a young adult, attended by himself and ended up at a table surrounded by five empty chairs. Megan, our Client Connection Manager (and social butterfly), never lets anyone sit alone! But while making her way over to Nick’s table, she realized he wasn’t there.

Instead, Nick had joined the kids in tossing a bright pink frisbee – and their smiles lit up the evening! The kids ran around, giggles filling the air, as Nick brought much-needed sunshine to the event (after a week of rain). Nick even blessed the parents by allowing them to enjoy a quick dinner without their kids.

Music Night inspired connections across all ages. Every client immersed themselves in music as they picked an emotion to add to the songs they sang. They later created their very own thunderstorm with their instruments!

Our volunteers warmly welcomed 32 individuals, including a new Spanish-speaking family! In the spirit of supporting a local business and neighbor, everyone was given a catered boxed meal from Carpenter’s.

“It was fun trying something new, and music night will definitely be back!” said Megan. She can’t wait for our next Connect event, so for information about attending or volunteering at future Connect Nights, please email Megan at Megan@CancerCareServices.org.

View our Event Calendar for upcoming Connect Nights!

Day’s Story

Day's Story

Stories of Hope: Day’s Story

I’ve been teaching for over 30 years and love what I do. I love the energy from students, the challenges teens bring, and the resilience they have when faced with challenges. Their examples actually helped me through a challenge that came my way in 2014 – my diagnosis of cancer.

The words “you’ve got cancer” are not words anyone wants to hear. From the initial disbelief to the tests to the plan of treatment to the resulting effects of surgery, chemo, radiation…cancer wants to strip you of everything you are and have.

From the obvious (does my insurance cover this); to the scary (will I survive); from the practical (how will I continue to pay my bills); to the emotional (am I going to lose my hair?); to the past (my mother didn’t survive this disease); to the future (I have so many things I still want to do)… each part of the cancer journey taught me about my own strengths and weaknesses, and taught me the importance of examples that have been set for me.

I had the example of my mother, who never complained publicly even when she was in pain. I had the example of my dad, who dropped everything to be with her throughout her journey. I had the example of friends who made phone calls, sent cards, and more. I had the example of doctors who were there night and day. I had the example of people who were there behind the curtains just in case.

And I had my students. I had students who gave me grace when I was trying to work 3 days after chemo. I had students who told me my head looked GOOD bald (I still prefer the shaved look, actually!) I had students who shared their stories of family cancer experiences and let me know they cared. I had teenage boys who sent me teenage boy jokes on chemo day that made me laugh (yes, laugh. They WERE naughty, but you can’t help but laugh).

And then there are the organizations that are there to support you such as Cuisine for Healing, the Texas Oncology network, and Cancer Care Services. Cancer Care Services has been a lifeline for friends going through this, for programs for youth, and for ongoing assistance for those who struggle. I have participated in National Cancer Survivors Day – a huge party designed to get people’s minds off the reality of cancer and on the reality of LIVING.

It was someone at Cancer Care Services who explained to me that one-day past diagnosis, I was and am a survivor. The journey ahead wasn’t going to be pleasant (she explained) but it didn’t matter; I was a survivor. I know that I can pick up the phone today and ask for help, and they will be there in whatever way they can. Cancer Care Services helps you deal with cancer, they offer care, and they provide or locate services for all who ask.

If you look at the Cancer Care Services calendar, there is everything; faith activities, massages, survivor resources, kid and youth resources, cooking, movies; camps for children and youth, you name it; there is support.

A final thought. While I was walking the halls after radiation (day after day after day after day) I had the opportunity to be blessed by artwork created by students from a local school. This year I had an opportunity to support that aspect of the Cancer Care Services’ program by bidding on and winning two pieces of artwork that had personal and special meaning to me in my life journey.

Those pieces will grace my walls at school as a daily reminder of Cancer Care and the people who care. There is beauty even in cancer; I learned life is a bit more precious when you know you’ve got examples and support in place, and when you get up each day a survivor.

Yarn Heals

Knitted socks by JuJu Knits

From the Desk of…

Julie Hatch Fairley

Cancer Care Services’ Donor & Founder of JuJu Knits

 

My 54-year-old seemingly healthy mom who never smoked a day in her life died of cancer of undiagnosed origin in only 18 weeks. I was only 30 years old, and I was broken.

Mom used to say “Pick yourself up by your bra straps, JulieSue.”

So I did, and I tried to move on.

I bought a house.

I advanced my career.

Over time, life got better, and I was living the dream once again.

So why did my heart feel so very heavy?

A counselor soon asked – “What did I use to do as a child that brought me joy?”

The answer was easy – “Dig in the dirt and play with yarn.”

On the spot, I received a written “prescription” to garden or knit one hour a day. I took my homework seriously and jumped in with both feet with a lofty goal to immediately make socks. Now for knitters, that’s not necessarily a starter project – hence the pointy toes pictured here.

Knitted socks by Julie
Knitted socks by Julie

I began to knit … and knit … and knit … and slowly I began to heal.

After miles and miles of yarn, my soul began to breathe.

Today, I am fortunate to be able to share the healing power of yarn with others.

In January, we began “Healing Hands” at Cancer Care Services – a monthly meet-up where cancer patients, clients, and caregivers can join me & other fiber friends for fellowship (and free instruction as needed) over yarn. Our group has varied in size each month, but one thing remains constant: when picking up yarn, people put down their phones … and their guard.

Patients set aside their treatment side effects.

Survivors feel hopeful.

Caregivers slowly unwind.

We all begin to think of something other than cancer for a few sacred hours.

It is now my honor to welcome this community to JuJu Knits, a new, local yarn store located at 552 Lipscomb, just a few blocks northeast of Cancer Care Services’ location on Henderson near Pennsylvania.

Every Wednesday from 5:30 to 8 p.m. JuJu Knits hosts a fiber fellowship. While the first Wednesday of each month is designated especially for Cancer Care clients and their friends or family, any Cancer Care client is always welcome to join me for fiber fun. We keep at the ready an ongoing stash of donated yarn, needles, hooks, and other supplies for those who wish to learn knitting or crochet but may not have the materials to get started.

The binding community of JuJu Knits is also raising funds for the Cancer Care Services Holiday Gas Card Drive through the sale of handmade ornaments & our yarn winding station.

I believe down to the toes of my pointy socks that yarn really can help one heal.

Thank you for the privilege of allowing me to share my love of yarn with Cancer Care.

With peace, love & yarn,

JuJu

www.jujuknitsfw.com

817.854.YARN

#bindingcommunity

#fiberfriends

#yarnheals

Cancer is a Thief

Firefighters and Cancer

From the Desk of…

Cameron Brown

Cancer Care Services’ Board Member, Volunteer, & Donor

A Story of Firefighters and Cancer

Cancer is a thief. It sneaks up on us and steals our loved ones, friends, and coworkers. For firefighters, it robs us of our dignity, strength, identity, careers, and lives. The International Association of Firefighters (IAFF) says that cancer is now the leading cause of death among firefighters.

Firefighters are typically mentally, emotionally, and physically strong. They are often identified as tactical athletes whose profession demands stamina, ruggedness, and grit. So what happens when one is diagnosed with cancer? The “C” word is a direct blow to one’s ego and sense of control. Feelings of helplessness and powerlessness come flooding into one’s life. The roles shift from first responder, primary provider, and caregiver to the one needing help.

One retired firefighter recently told me that he was so traumatized by his cancer diagnosis and treatment regimen that he feels like he has post-traumatic stress disorder. Before diagnosis, he worked at a very busy fire station, was confident in his competence, and took great pride in his work. He described the firefighters at his station as “family” because together they prepared and ate meals, worked out, and responded to emergency medical calls and fires.

When he was diagnosed, he was embarrassed and did not want to tell anyone. He feared being perceived as weak, vulnerable, and unable to perform his job. Consequently, he suffered in silence, isolated himself while this disease robbed him of his relationships, health, confidence, and career.

He described many losses in his life such as loss of physical ability to do his job, loss of relationship with his fellow firefighters, and loss of identity as a rescuer. He identifies himself as someone who was born to do this job and this is the only profession he ever wanted to do. During and after treatment, he felt like a “has been” because physically he could no longer fight fires.

Ironically, fighting fires (the thing he loved to do) is probably the culprit for his cancer due to exposure to the products of combustion. (Firefighters have a greater risk of being diagnosed with cancer and an even greater risk of dying from the disease compared to the general populations of the US, according to the National Institute for Occupational Safety and Health, NIOSH.)

The late Stuart Scott (ESPN sportscaster and often-quoted recipient of the Jimmy V Award at the 2014 ESPY Awards) said, “You beat cancer by how you live, why you live, and the manner in which you live.”

Like many, this firefighter openly questioned why he got cancer: he ate a healthy diet, worked out, was kind, and was always willing to help others. His course of therapy included many months of surgeries, chemotherapy, and radiation. He described living in a lonely world void of companionship.

For a while, he lost his purpose in life because he was no longer a physically fit firefighter. His drive to help others was significantly diminished and although he had many family members, friends, and co-workers willing to help, he was unable to accept support. The thoughts about his cancer and the end of his firefighting career became all-consuming. Fortunately, a turning point came.

The turning point for him was the day when he was no longer embarrassed to ask for help. He realized his life was spinning out of control and he sought counseling.

Because of the nature of the work: providing help in times of crisis, the fire service is a sub-culture with a unique perspective and unfamiliar needs. I am proud that Cancer Care Services has chosen to partner with local fire departments to help firefighters and their families navigate the complex system of care called into action after diagnosis.

As part of the Fort Worth Firefighters Cancer Focus Group (FWFF), Cancer Care has helped coordinate a symposium planned for September 6, 2019. Understanding that the fire service is a unique community that wants to take care of itself so it can care for others, the symposium will bring community resources together to educate members of the fire service family on the latest developments in prevention, detection, diagnosis, and treatment.

Further, Cancer Care Services provides professional counseling and cancer case management to firefighters and their families. It is my hope, and Cancer Care’s, that one day soon Cancer Care’s professional team will include a Cancer Navigator specializing in helping first responders and their families answer a different type of emergency call.

Today, the retired firefighter I described earlier is a courageous cancer warrior and survivor. For him, what matters is not what he lost but what he has gained. Firefighters – like so many going through cancer treatment – are brave and resilient, often because of support and insight gained from organizations like Cancer Care Services.

Cancer Care Services empowers clients to regain their dignity, sense of identity, and control. When they feel supported, cancer can’t define nor steal an individual’s strength of character. Cancer may be a thief but it cannot “cripple love, shatter hope . . . [or] steal eternal life.”

Shandreka’s Story

Shandreka's Story

Stories of Hope: Shandreka’s Story

In August of 2016, I had recently lost my job, and our money was extremely tight. All of my energy was focused on finding a new job when my husband, Michale, was diagnosed with stage 4 Squamous Cell Carcinoma of the head and neck. We had no idea what to do or where to go for help. Like so many who hear a diagnosis like this, we were afraid that we couldn’t get the care needed for my husband to fight and survive this. Fortunately, he still had his insurance, and we were able to see an oncologist. But I still worried about what was ahead; how many appointments, medications, and treatments?

At our first appointment with the oncologist, the staff gave me a stack of paper – pages and pages to fill out and sign. The last form asked if I needed assistance with information, guidance, or any financial help. Of course, my first thought was that there was no way that we would get any help, but I filled it out anyway and gave it back.

I was so surprised when the very next day, I got a call from Margaritta, a staff social worker at Cancer Care Services. (She probably doesn’t know this, but right before she called, I was crying alone in my room – not knowing if I was going to lose my mind and my husband of 20 years… I was feeling so much stress.) One of the first things she said to me was to ask if I was ok. I thought that was a little weird because I wasn’t the one with cancer and because no one else had asked me how I was doing.

Somehow, though, I think she knew I wasn’t ok, and she started feeding me with information. She got me in touch with people like Caryn, one of their Registered Dietitians and Certified Specialists in Oncology Nutrition, who would help me understand the special nutrition needs Michale would have and what I should do to help him stay nourished.

And then – help started flooding in from everywhere! There was a great help with the medical side of things for Michale and me, and there were things to help us cope with the emotional side of things, too. We got to do things together as a couple and as a family– which was really important to me because I wasn’t just a wife and caregiver; I was still a mother of two also! From going to baseball games and couples dinners to meeting new friends who could relate to us because they’d been on a cancer journey too, we were able to maintain a little bit of normal in our home life.

Because of the help and information we received through Cancer Care Services, our family survived this. Thank you, Cancer Care Services!

From the Desk of a Social Worker

Social Worker taking notes

From the Desk of…

a Cancer Care Services’ Social Worker

A day in the life of a social worker at Cancer Care Services is filled with many different roles and responsibilities. No two days are exactly alike, but each day we are focused on providing care and support to the people we are here to serve. While our team of clinic-based social workers operates within the parameters of a specific, off-site clinic setting, the social workers in our building on S Henderson Street serve a broad spectrum of individuals from our community who have been affected by cancer.

Our community social workers typically spend the first few moments in the building preparing for the day. Everyone has their own process, but in addition to tending to basic administrative chores, this time is meant to put the social worker in a healthy state of mind to connect with clients. Sometimes social workers even jam out to action movie soundtracks, but those are a rare breed.

Prep time serves another practical purpose: we don’t begin reaching out to clients until after 9:00 AM, in order to give patients sufficient time to wake and prepare for whatever their day may hold. These calls continue conversations about previously identified needs or concerns; we want clients to feel they are kept current, and not like they are having to wait on responses to questions. After every call is completed on behalf of the patient, the social worker documents the exchange with a note to the client’s file. Detailed documentation is an essential element of professional social work.

Typically, the social worker will then move on to Intake phone calls. This is the first step in bringing a client on board to receive services from our agency. Many routine questions are asked in order to assess the client’s physical, mental, and even financial condition and begin to formulate a care plan for them. Not surprisingly, many notes are added to the file. Altogether, this process takes roughly an hour for each new client.

Once Intake is completed, then the social worker schedules a time to meet the new client in person, preferably, to discuss in more detail the needs of the client as well as those of his or her entire household. At Cancer Care Services, the cancer patient is not the only type of client. The husband, wife, child, parent, and any caregiver – can all be clients.

The social worker will spend time throughout their day researching and attempting to connect these people with the resources they need – whether it’s financial help, counseling, food assistance, proper treatment, prescription medications, housing, car repairs, social connections, medical supplies, nutrition supplements, burial assistance, and sometimes even mattresses. Basically, anything that is a concern or need of the cancer patient’s household becomes a priority of the social worker.

The social worker will also spend time throughout the day receiving phone calls from dietitians, nurses, and other medical staff. These medical professionals are close with their cancer patients and are a key link in the chain of caring for and providing assistance to our clients. Each one of these professionals works within the guidelines of the Healthcare Insurance Portability and Accountability Act (HIPPA), which keeps patient information confidential.

Social workers are constantly sending and receiving order forms to provide medical assistance for the patient in these cases. For instance, if a patient needs colostomy supplies, then a nurse will send over an order form, and the social worker then searches online for the specific supplies and presents their selections to a supervisor for approval.

Cancer Care Services accepts any cancer patient no matter what phase of treatment – or survivorship – they are in. We know any help that can be provided goes a long way for our patients, and we are proud to play a vital part in that process.

If you need help, fill out our online form to get in contact with a Cancer Care team member.

Karen’s Story

Karen's Story

Stories of Hope: Karen’s Story

Cancer Care Services was a tremendous resource when my mom was diagnosed with cancer. She was 40 years old and had stage 2 breast cancer. Prior to her diagnosis, there was no history of cancer in our family.

When you hear the word cancer, you immediately have a ton of questions. How much time is left? Is it treatable? What are my options? What will it cost? We needed some guidance on how to navigate treatment. My knowledge was so limited about cancer and treatments and even how to comfort her through this scary time.

I was able to research online and found a Spanish support group at Cancer Care that could help answer some questions. At first, my mom refused to attend the support group because she thought it would be sad and depressing. It was actually the opposite.

My mom had a double mastectomy shortly prior to attending the first support group meeting at Cancer Care. The women and men in the meeting provided the comfort and encouragement she needed. She was able to hear testimonies from survivors and share her concerns with people who completely understood. Cancer Care offered my mom the kind of emotional support that no one else could. That’s not all Cancer Care Services did for her!

The financial burden that cancer adds to a family that is already struggling financially is stressful and almost unbearable. Cancer Care was able to help with my mom’s medical treatment expenses, such as the Cobra premiums and co-pays for doctor’s visits. Cancer Care also paid for my mom’s lymphedema sleeve after the insurance company called this a cosmetic sleeve and refused to cover the cost.

Cancer Care helped cover our medical needs and even helped my mom get a wig at a Look Good, Feel Good events that helped her esteem and confidence while going through cancer. Cancer Care was there to provide emotional support, financial support, and improve the overall well-being of our family. Cancer Care Services cared for our family during the most difficult times, which is why I love being able to give back in every way that I can.

Bailey’s Story

Bailey's Story - Bailey is with her husband.

Stories of Hope: Bailey’s Story

My name is Bailey McLeod, and I am a breast cancer survivor. I was diagnosed with an aggressive form of breast cancer called Triple Negative during my senior year of college at 21-years-old. Although I have no family history of breast cancer, when I felt it, I knew. It was a very tiny lump, only 7mm in diameter, but I knew in my gut that it didn’t belong in my body.

I didn’t have an OBGYN at the time, so I spent the next day desperately trying to find a physician who would see me and investigate it further. I was turned down by 5 offices before someone agreed to see me for my symptom. A doctor’s visit turned into an ultrasound, which turned into a mammogram, and finally turned into a biopsy. On February 12, 2016, one week after finding my lump, I was diagnosed. Naturally, my entire family was in shock. I asked to be referred to UT Southwestern in Dallas, and from there we got the ball rolling.

First things first, we wanted to get genetic testing done to find out if I had a genetic mutation that made me more likely to develop breast cancer, such as with the BRCA gene. As it turns out, I was negative for any mutations, which was a bittersweet discovery because although I really wanted an answer as to why I got breast cancer so young, if I had been positive that meant I could pass it on to my children. It would also make me more likely to develop ovarian cancer, which would ultimately lead to a full hysterectomy.

A couple of weeks later, it was time for surgery. I decided to undergo a prophylactic double mastectomy with reconstruction. Two weeks after that, I started the egg preservation process. Although I found my cancer in its early stages, it was very aggressive, and therefore I was advised to do eight rounds of bi-weekly chemotherapy. Chemo is known to damage your reproductive system, and my being in child-bearing years, it was pertinent that I have a backup plan for my desire to one day be a mother. The entire process took about two weeks and we retrieved 36 eggs, 21 of which were mature enough to freeze and store. A few days later, I started chemotherapy.

I want to mention, throughout all this, I was still attending my classes as much as I could. I was grateful to have professors and a wonderful advisor who worked with me to ensure I was able to graduate that May, which I’m proud to say I did. On July 21, 2016, I completed my eighth round of chemo AND got engaged to my boyfriend at the time. We had been dating for two years when I was diagnosed, and he was my rock throughout the whole thing. A few weeks later, I had my final reconstruction surgery. I was done! Or so I thought…

After finishing treatment, I thought I would be able to close that chapter and move on. Unfortunately, that’s not the case when you go through something as traumatic as cancer. Throughout my entire experience, I felt very isolated. Although I had an amazing support team, I didn’t personally know anyone my age who had been through what I had been through. I felt like I had so many emotions bottled up inside me that I desperately wanted to share with someone who truly understood.

Through Cancer Care Services, I learned of two organizations that changed my life: The Young Survival Coalition and The Fort Worth Adolescent and Young Adult Oncology Coalition. YSC has been an amazing outlet for me to connect with other young women who have been diagnosed with breast cancer under the age of 40. FWAYA has allowed me to meet different groups of young people diagnosed with ANY type of cancer.

If it weren’t for Cancer Care Services I would have never been introduced to these two amazing establishments. Meeting so many people to who I can relate has truly helped me to digress from my negative feelings towards cancer and has helped me to move on and live a happier life.

Marisol’s Story

Marisol's Story - Marisol Nunez and John Mosman are smilling at the camera.

Stories of Hope: Marisol’s Story

I was diagnosed with neuroblastoma as a toddler. I was tested with chemo, radiation, immunotherapy, and photon radiation. From the treatments, I got secondary leukemia, heart damage, ITP, anemia, kidney damage, bone and joint damage, a lazy eye, hearing damage, and many other complications. In my early 20’s I relapsed with leukemia. I never wanted to participate in any events and chose not to disclose my previous medical history.

After 5 years of marriage, my husband and I decided to seek a fertility specialist without success. A year later I became pregnant and went against medical advice and kept the pregnancy. It was extremely difficult and the delivery was worst. My child and I almost lost our lives. I was also told that I had a concerning MRI and continuous bleeding post-delivery. I returned to medical treatment where I was informed I had low-grade cancer in my center nervous system. It was a hard diagnosis, but being more actively involved in Cancer Care Services and a part of social groups has made the diagnosis easier.

I participated in the Camp Gold Retreat. It was my first time participating in an AYA (Adolescent and Young Adult) event. I was beyond excited and amazed at the close-knit group of young adults that had overcome so much. I also participated in the Chroma Services Ladies Night Out makeover. I loved the pampering! In June of 2018, my family and I attended the National Cancer Survivors Day event. It was an emotional celebration. I thank Cancer Care Services for the services and events I and my family have been able to participate in!